Research Summary

My training is in sociology (emphasis on culture, inequality, and research methods) and health policy. My research uses mixed-methods social scientific approaches to examine how the culture of medicine shapes delivery of patient care and conduct of medical research. I lead three major research projects. I am co-Program Director for EngageUC – a three-year CTSA initiative to develop harmonized processes for biospecimen repository data collection and analysis across all five University of California medical centers. EngageUC includes a statewide community engagement activity as well as a randomized trial of different consenting methods. I am PI for the Cancer Patient Deliberation study, an NCI-funded R01 examining how patients with advanced cancer make decisions about treatment and participation in clinical trials. Finally, I am PI of a recently-funded contract with the Patient Centered Outcomes Research Institute (PCORI) to explore how to integrate qualitative methods into PCOR using visual displays of qualitative data. At UCSF, I hold a number of leadership positions related to training and program development including Deputy Director of the Institute for Health Policy Studies, co-lead of the health policy theme in the undergraduate medical education curriculum, Chair of the campus-wide Precision Medicine Regulatory/Policy workgroup, lead faculty of the proposed MS in Health Policy and Law, and co-Director of the UCSF/UC Hastings Consortium on Law, Science, and Health Policy.

Research Funding

  • September 1, 2020 - May 31, 2025 - Leadership to Enhance Aging Research and Innovation in Medical Culture (LEARN-MC) , Principal Investigator . Sponsor: NIH, Sponsor Award ID: K07AG066814
  • July 10, 2021 - April 30, 2025 - Anticipating ethical challenges and disparities in the dissemination of novel neurotechnologies , Co-Principal Investigator . Sponsor: NIH, Sponsor Award ID: R01MH126997
  • September 15, 2020 - August 31, 2024 - Next-Gen ethnography to understand decision-making among diverse populations impacted by Alzheimer's disease and related dementias (ADRD) , Principal Investigator . Sponsor: NIH, Sponsor Award ID: DP1AG069809
  • September 13, 2017 - May 31, 2021 - Achieving ethical integration in the development of novel neurotechnologies , Co-Principal Investigator . Sponsor: NIH, Sponsor Award ID: R01MH114860
  • September 1, 2017 - May 31, 2020 - Developing Tools to Support the Appropriate Use of Surgery in Frail Older Adults , Co-Principal Investigator . Sponsor: NIH, Sponsor Award ID: R21AG054208
  • June 1, 2010 - April 30, 2016 - Before Consent: Cancer Patients' Deliberations about Early Phase Clinical Trials , Principal Investigator . Sponsor: NIH, Sponsor Award ID: R01CA152195
  • September 15, 2003 - August 31, 2007 - Poverty, Substance Use, and Stigma in Four Organizations , Principal Investigator . Sponsor: NIH, Sponsor Award ID: R21AA014855

Education

Harvard College, Cambridge, MA, AB, 1987, Sociology
University of California Berkeley, MA, 1991, Sociology
University of California Berkeley, PhD, 1997, Sociology
University of California Berkeley, post-doc, 1999, Health Policy
University of California Berkeley, post-doc, 2001, Health Policy

Honors & Awards

  • 1987
    AB Magna cum Laude with Highest Honors in Sociology, Harvard College, Cambridge MA
  • 1987
    Hoopes Prize, Senior Honors Thesis "Malpractice in Massachusetts: Physicians' Perspectives," Harvard College
  • 1989
    Regents Intern-Fellow, UC Berkeley
  • 1994
    Carol Hatch Ethnography Award, UC Berkeley Sociology Department
  • 1998
    Outstanding Graduate Student Instructor, UC Berkeley
  • 2006
    UCSF-Coro Faculty Leadership Collaborative

Selected Publications

  1. Arteaga I, Hernandez de Jesus A, Ginn B, Abramson CM, Dohan D Understanding how social context shapes decisions to seek institutional care: a qualitative study of experiences of progressive cognitive decline among latinx families.  View on PubMed
  2. Parks AL, Thacker A, Dohan D, Gomez LAR, Gale SA, Johnson KG, Ritchie CS, Shah SJ, Paladino J Characterizing clinician communication with patients about lecanemab: A qualitative study of clinicians across seven academic medical centers.  View on PubMed
  3. Harrison KL, Adrion ER, Friend J, Garrett SB, Halim M, Terranova M, Sideman AB, Boyd ND, Naasan G, Gilissen J, Chen P, Aldridge MD, Dohan D, Geschwind MD, Smith AK, Ritchie CS "It may cost you your money, it costs you your life": a framework for financial hardship in dementia.  View on PubMed
  4. Arteaga I, Hernandez de Jesus A, Ginn B, Abramson C, Dohan D Simulated Interviews, Real Results: A feasibility Study Implementing "Standardized Research Participants" cases in Qualitative Research Training with Older Adults.  View on PubMed
  5. Weiss Goitiandia S, Sun AZ, Rosenwohl-Mack A, Ly C, Sleeman KE, Dohan D, Dzeng E Systemic Strategies to Prevent Nonbeneficial Treatments Near the End of Life.  View on PubMed
  6. Ogomori K, Axelrod JK, Finlayson E, Dohan D, Dehlendorf C, Bongiovanni T Communication After Emergent Surgery by English Proficiency: An Exploratory Qualitative Study.  View on PubMed
  7. Parks AL, Thacker A, Dohan D, Gomez LAR, Ritchie CS, Paladino J, Shah SJ A qualitative study of people with Alzheimer's disease in a memory clinic considering lecanemab treatment.  View on PubMed
  8. Lam K, Harrison JD, Haller L, Deardorff WJ, Sudore RL, Covinsky KE, Matlock DD, Dohan D "Nobody Can Be Equipped for This": Advice From New Residents of Long-Term Care Facilities.  View on PubMed
  9. Chehab L, Weiss Goitiandia S, Pereira L, Jung K, Chen A, Patel D, Axelrod J, Li L, Williams I, Dohan D, Sammann A, Dzeng E. Using Human-Centered Design to Improve Serious Illness Care for Older Adults With Advanced Dementia. J Pain Symptom Manage. 2025 Mar; 69(3):e228-e239.  View on PubMed
  10. Parks AL, Thacker A, Dohan D, Gomez LAR, Ritchie CS, Paladino J, Shah SJ. "I'm worth saving"- A Qualitative Study of People with Alzheimer's Disease Considering Lecanemab Treatment. medRxiv. 2024 Sep 18.  View on PubMed
  11. Chen BB, Haeusermann T, Dada A, Hamilton RH, James JE, Fong KC, Dohan D, Chiong W. Race-Ethnicity, Rurality, and Age in Prospective Preferences and Concerns Regarding Closed-Loop Implanted Neural Devices. J Neuropsychiatry Clin Neurosci. 2025; 37(1):79-87.  View on PubMed
  12. Chang GJ, Gunn HJ, Barber AK, Lowenstein LM, Dohan D, Broering J, Dockter T, Tan AD, Dueck A, Chow S, Neuman H, Finlayson E, OPTI-Surg Investigators. Improving Surgical Care and Outcomes in Older Cancer Patients Through Implementation of a Presurgical Toolkit (OPTI-Surg)-Final Results of a Phase III Cluster Randomized Trial (Alliance A231601CD). Ann Surg. 2024 Oct 01; 280(4):623-632.  View on PubMed
  13. Chu CD, Dohan D, Estrella MM, Shlipak MG, Tuot DS. Primary care clinician perspectives on automated nephrology e-consults for diabetic kidney disease: a pre-implementation qualitative study. BMC Prim Care. 2024 Jun 04; 25(1):197.  View on PubMed
  14. Haeusermann T, Liu EY, Fong KC, Dohan D, Chiong W. Patient experiences of resection versus responsive neurostimulation for drug-resistant epilepsy. Epilepsy Behav. 2024 Apr; 153:109707.  View on PubMed
  15. Batool S, Hansen EE, Sethi RKV, Rettig EM, Goguen LA, Annino D, Uppaluri R, Edwards HA, Faden DL, Dohan D, Dhand A, Reich AJ, Bergmark RW Personal Social Networks and Care-Seeking for Head and Neck Cancer: A Qualitative Study.  View on PubMed
  16. Shaw NM, Breyer BN, Walter LC, Sudore RL, Suskind AM, Baussan C, Quanstrom K, Allen IE, Cooperberg MR, Dohan D, Hampson LA. How older men live with stress urinary incontinence: Patient experience and navigation to treatment. Neurourol Urodyn. 2024 Jan; 43(1):11-21.  View on PubMed
  17. Sideman AB, Ma M, Hernandez de Jesus A, Alagappan C, Razon N, Dohan D, Chodos A, Al-Rousan T, Alving LI, Segal-Gidan F, Rosen H, Rankin KP, Possin KL, Borson S. Primary Care Pracitioner Perspectives on the Role of Primary Care in Dementia Diagnosis and Care. JAMA Netw Open. 2023 09 05; 6(9):e2336030.  View on PubMed
  18. Dzeng E, Batten JN, Dohan D, Blythe J, Ritchie CS, Curtis JR. Hospital Culture and Intensity of End-of-Life Care at 3 Academic Medical Centers. JAMA Intern Med. 2023 08 01; 183(8):839-848.  View on PubMed
  19. Hampson LA, Shaw NM, Breyer BN, Walter LC, Sudore RL, Cooperberg MR, Baussan C, Quanstrom K, Elaine Allen I, Dohan D. Patient-identified Treatment Attributes Among Older Men With Stress Urinary Incontinence: A Qualitative Look at What Matters to Patients Making Treatment Decisions. Urology. 2023 07; 177:189-196.  View on PubMed
  20. Jones CP, Shaw NM, Mena J, Breyer BN, Walter LC, Baussan C, Quanstrom K, Allen IE, Dohan D, Hampson LA. The relationship between frailty, incontinence severity, and treatment decisions for men with post-prostatectomy stress urinary incontinence: a mixed methods analysis. Transl Androl Urol. 2023 May 31; 12(5):840-848.  View on PubMed

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