Cancer Registry

Procedure: Contact the Cancer Registry and ask for a Data Request Form.

All information released (except unidentifiable aggregate data) must be accompanied by a CHR approval letter and a copy of the research proposal. The proposal must include a statement(s) indicating that the Cancer Registry information database will be used in the research.

The following highlights some of the information available:

• Name
• Address at diagnosis
• Current address
• Payer Information
• Occupation
• Age (Date of Birth, Age @ diagnosis)
• Sex
• Race/Ethnicity
• Hospital/Physician Referred from
• Date of Diagnosis
• Date of First Outpatient Admission
• Date of First Inpatient Admission
• Managing Physicians
• All physicians involved in care at UCSF
• Findings on Phys. Exam (Text)
• Findings on X-rays, scans (Text)
• Pertinent laboratory data (Text)
• Tumor Markers (Text & Code)
• Primary site (detailed)
• Multiple Primaries
• Histology, Grade, Differentiation (Coded and text)
• Description of path from report in text showing
• extension, depth of invasion, tumor size
• Pathology Slide Numbers
• Staging: AJCC TNM, Collaborative & SEER Summary Stage
• Surgery + Lymph nodes examined and positive
• Radiation detail – fields, volume, cGy and
• Chemotherapy details, with drug names and dates given
• Recurrence Information , date and type (if available)
• All subsequent treatment after UCSF discharge
• Follow-up, case updated annually with current
• information on vital and tumor status
• Cause of Death information (if available)
• Following physicians
• Co-morbid conditions (NEW)
• Year First Seen
• Medical Record Number
• Volume analyses
• Survival analyses

Registry Reference Date = 1985

The above data items are not all inclusive but are an overview of the Cancer Registry information available and include items not found in patient medical records or shadow charts. Please contact the Cancer Registry Manager for study design assistance or any other questions/concerns, 353-9700.

To be submitted with accompanying documentation.

FORM TBD

Via https://irb.ucsf.edu/

American Joint Committee on Cancer

The AJCC website provides information about its mission, membership, and initiatives, as well as publications and products, including the AJCC Cancer Staging Manual, 6th Edition.