Research Summary

My training is in sociology (emphasis on culture, inequality, and research methods) and health policy. My research uses mixed-methods social scientific approaches to examine how the culture of medicine shapes delivery of patient care and conduct of medical research. I lead three major research projects. I am co-Program Director for EngageUC – a three-year CTSA initiative to develop harmonized processes for biospecimen repository data collection and analysis across all five University of California medical centers. EngageUC includes a statewide community engagement activity as well as a randomized trial of different consenting methods. I am PI for the Cancer Patient Deliberation study, an NCI-funded R01 examining how patients with advanced cancer make decisions about treatment and participation in clinical trials. Finally, I am PI of a recently-funded contract with the Patient Centered Outcomes Research Institute (PCORI) to explore how to integrate qualitative methods into PCOR using visual displays of qualitative data. At UCSF, I hold a number of leadership positions related to training and program development including Deputy Director of the Institute for Health Policy Studies, co-lead of the health policy theme in the undergraduate medical education curriculum, Chair of the campus-wide Precision Medicine Regulatory/Policy workgroup, lead faculty of the proposed MS in Health Policy and Law, and co-Director of the UCSF/UC Hastings Consortium on Law, Science, and Health Policy.

Research Funding

  • September 13, 2017 - May 31, 2021 - Achieving ethical integration in the development of novel neurotechnologies, Co-Principal Investigator. Sponsor: NIH/NIMH, Sponsor Award ID: R01MH114860
  • September 1, 2017 - May 31, 2019 - Developing Tools to Support the Appropriate Use of Surgery in Frail Older Adults, Co-Principal Investigator. Sponsor: NIH/NIA, Sponsor Award ID: R21AG054208
  • June 1, 2010 - April 30, 2015 - Before Consent: Cancer Patients'Deliberations about Early Phase Clinical Trials, Principal Investigator. Sponsor: NIH/NCI, Sponsor Award ID: R01CA152195
  • September 15, 2003 - August 31, 2007 - Poverty, Substance Use, and Stigma in Four Organizations, Principal Investigator. Sponsor: NIH/NIAAA, Sponsor Award ID: R21AA014855

Education

Harvard College, Cambridge, MA, AB, 1987, Sociology
University of California Berkeley, MA, 1991, Sociology
University of California Berkeley, PhD, 1997, Sociology
University of California Berkeley, post-doc, 1999, Health Policy
University of California Berkeley, post-doc, 2001, Health Policy

Honors & Awards

  • 1987
    AB Magna cum Laude with Highest Honors in Sociology, Harvard College, Cambridge MA
  • 1987
    Hoopes Prize, Senior Honors Thesis "Malpractice in Massachusetts: Physicians' Perspectives," Harvard College
  • 1989
    Regents Intern-Fellow, UC Berkeley
  • 1994
    Carol Hatch Ethnography Award, UC Berkeley Sociology Department
  • 1998
    Outstanding Graduate Student Instructor, UC Berkeley
  • 2006
    UCSF-Coro Faculty Leadership Collaborative

Selected Publications

  1. Mergenthaler JV, Chiong W, Dohan D, Feler J, Lechner CR, Starr PA, Arias JJ A Qualitative Analysis of Ethical Perspectives on Recruitment and Consent for Human Intracranial Electrophysiology Studies.  View on PubMed
  2. Garg M, Eniasivam A, Satterfield J, Norton B, Austin E, Dohan D Rapid transition of a preclinical health systems science and social justice course to remote learning in the time of coronavirus.  View on PubMed
  3. Rosenwohl-Mack S, Dohan D, Matthews T, Batten JN, Dzeng E Understanding Experiences of Moral Distress in End-of-Life Care Among US and UK Physician Trainees: a Comparative Qualitative Study.  View on PubMed
  4. Bernstein A, Merrilees J, Dulaney S, Harrison KL, Chiong W, Ong P, Heunis J, Choi J, Walker R, Feuer JE, Lee K, Dohan D, Bonasera SJ, Miller BL, Possin KL Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.  View on PubMed
  5. Liu LH, Garrett SB, Li J, Ragouzeos D, Berrean B, Dohan D, Katz PP, Barton JL, Yazdany J, Schmajuk G Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis.  View on PubMed
  6. Garrett SB, Matthews TM, Abramson CM, Koenig CJ, Hlubocky FJ, Daugherty CK, Munster PN, Dohan D Before Consent: Qualitative Analysis of Deliberations of Patients With Advanced Cancer About Early-Phase Clinical Trials.  View on PubMed
  7. Rendle KA, Abramson CM, Garrett SB, Halley MC, Dohan D Beyond exploratory: a tailored framework for designing and assessing qualitative health research.  View on PubMed
  8. Bernstein A, Harrison KL, Dulaney S, Merrilees J, Bowhay A, Heunis J, Choi J, Feuer JE, Clark AM, Chiong W, Lee K, Braley TL, Bonasera SJ, Ritchie CS, Dohan D, Miller BL, Possin KL The Role of Care Navigators Working with People with Dementia and Their Caregivers.  View on PubMed
  9. Garrett SB, Abramson CM, Rendle KA, Dohan D Approaches to decision-making among late-stage melanoma patients: a multifactorial investigation.  View on PubMed
  10. Petrillo LA, McMahan RD, Tang V, Dohan D, Sudore RL Older Adult and Surrogate Perspectives on Serious, Difficult, and Important Medical Decisions.  View on PubMed
  11. Garrett SB, Murphy M, Wiley J, Dohan D Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual.  View on PubMed
  12. Dzeng E, Dohan D, Curtis JR, Smith TJ, Colaianni A, Ritchie CS Homing in on the Social: System-Level Influences on Overly Aggressive Treatments at the End of Life.  View on PubMed
  13. Garrett SB, Koenig CJ, Trupin L, Hlubocky FJ, Daugherty CK, Reinert A, Munster P, Dohan D What advanced cancer patients with limited treatment options know about clinical research: a qualitative study.  View on PubMed
  14. Possin KL, Merrilees J, Bonasera SJ, Bernstein A, Chiong W, Lee K, Wilson L, Hooper SM, Dulaney S, Braley T, Laohavanich S, Feuer JE, Clark AM, Schaffer MW, Schenk AK, Heunis J, Ong P, Cook KM, Bowhay AD, Gearhart R, Chodos A, Naasan G, Bindman AB, Dohan D, Ritchie C, Miller BL Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem.  View on PubMed
  15. Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D Community recommendations on biobank governance: Results from a deliberative community engagement in California.  View on PubMed
  16. Murphy M, Garrett SB, Boyd E, Dry S, Dohan D Engaging Diverse Stakeholders to Inform Biobank Governance.  View on PubMed
  17. Dunn LB, Wiley J, Garrett S, Hlubocky F, Daugherty C, Trupin L, Munster P, Dohan D Interest in initiating an early phase clinical trial: results of a longitudinal study of advanced cancer patients.  View on PubMed
  18. Dohan D, Garrett SB, Rendle KA, Halley M, Abramson C The Importance Of Integrating Narrative Into Health Care Decision Making.  View on PubMed
  19. Rhoads K, Dohan D Knowing it When You See it: The Need for Continuing Innovation in Research on Healthcare Discrimination.  View on PubMed
  20. Abramson CM, Dohan D BEYOND TEXT: USING ARRAYS TO REPRESENT AND ANALYZE ETHNOGRAPHIC DATA.  View on PubMed

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